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Identifier

000357756

Title

Βιοηθικές και κοινωνικές διαστάσεις του προγεννητικού ελέγχου για τη β-θαλασσαιμία : απόψεις ειδικών σε μονάδα προγεννητικού ελέγχου στην Ελλάδα

Author

Μουρατίδου, Παρθένα-Ελένη

Thesis advisor

Κούση, Μαρία

Abstract

The enormous progress made in recent years in the field of human genetics and diagnostic techniques, created new conditions and possibilities for prenatal diagnosis. In Greece prenatal testing is carried out systematically for the past thirty years, mainly to detect single gene diseases such as β-thalassemia, thus effectively reducing the birth rate of affected children. However, the possibilities offered by the prenatal tests raise a number of ethical, social, political and legal dilemma, placing prenatal diagnostic methods at the center of scientific debate. This thesis aims to explore and offer a new perspective on the ethical and social issues raised by prenatal screening for β-thalassemia, based on qualitative interviews of specialist health professionals in prenatal testing center in Greece, thus contributing towards. The theoretical part of the work centers on bioethical, social, political and legal issues related to beta- thalassemia, such as, a) the debate concerning the rights of persons with disabilities, b) the autonomy principle and informed consent, c) the issue of eugenics and prenatal diagnosis, d) selective abortion, and e) the role of bioethics and genetic counseling in prenatal examinations. Qualitative analysis is applied using in-depth interviews with experts. According to the specialized personnel of a Greek prenatal testing center a process of ‘ηθικοποίηση’ ‘ethicization’ is taking placing on the part of those participating in the tests. This also reflects the limits of the special relationship between the participants and the experts. Experts emphasize the issue of autonomy of the individual and propose ethical criteria for the implementation of guidelines related to prenatal diagnosis. They stress the important role of the state and its responsibility concerning: a) the setting of guidelines on prenatal examinations, b) qualitative control of all procedures for conducting diagnoses, c) the institutional recognition of specialized professional in genetic counseling, d) informing the public, especially vulnerable groups as well as, e) the organization and support of prevention programs.

Language

Greek

Issue date

2010

Collection

School/Department--School of Philosophy--Department of Philosophy & Social Studies--Post-graduate theses

Type of Work--Post-graduate theses

Notes

Διατμηματικό πρόγραμμα μεταπτυχιακών σπουδών βιοηθική.

Permanent Link

https://elocus.lib.uoc.gr//dlib/e/d/c/metadata-dlib-d4e621bc1a6f878025e1685ec65e5bd6_1277112799.tkl